I want you to meet two very precious people, Waverly and Oliver…
Sanfilippo Syndrome is a genetic disease that is seen in about 1 in 70,000 births. Symptoms generally appear after the first year of a child's life, and children who have been diagnosed with Sanfilippo Syndrome will learn and grow and play just like all children. However, usually sometime between their 2nd and 6th birthdays these children will experience developmental delays followed by deteriorating mental status. Most children will live into their teens, some will live longer.
As of today, there is no cure for Sanfilippo Syndrome and there has been little research.
and HERE my lovelies - is where YOU come in!
Have you heard of the Pepsi Refresh Project?
No?
Ok, here's how it works…
Every month Pepsi is giving away a total of $1,000,000 to fund IDEAS that make the world a better place. But WE NEED TO TELL THEM WHAT TO FUND!
Every day you can vote for up to 10 ideas! At the end of each month, the ideas with the most votes will receive big monetary grants!
Very simply, Waverly and Oliver need your support. Please click the link below
CLICK HERE TO VOTE!
and continue to click every day in January.
YOU MAY ALSO TEXT
105582 to PEPSI (73774) each day in January.
Sanfilippo Syndrome is a genetic disease that is seen in about 1 in 70,000 births. Symptoms generally appear after the first year of a child's life, and children who have been diagnosed with Sanfilippo Syndrome will learn and grow and play just like all children. However, usually sometime between their 2nd and 6th birthdays these children will experience developmental delays followed by deteriorating mental status. Most children will live into their teens, some will live longer.
As of today, there is no cure for Sanfilippo Syndrome and there has been little research.
and HERE my lovelies - is where YOU come in!
Have you heard of the Pepsi Refresh Project?
No?
Ok, here's how it works…
Every month Pepsi is giving away a total of $1,000,000 to fund IDEAS that make the world a better place. But WE NEED TO TELL THEM WHAT TO FUND!
Every day you can vote for up to 10 ideas! At the end of each month, the ideas with the most votes will receive big monetary grants!
Very simply, Waverly and Oliver need your support. Please click the link below
CLICK HERE TO VOTE!
and continue to click every day in January.
YOU MAY ALSO TEXT
105582 to PEPSI (73774) each day in January.
Thanks for posting our story. We greatly appreciate it!
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